Friday, February 8, 2013

One year ago TODAY

One year ago today our lives changed forever. I received a phone call that I will never forget. First our pediatrician's office called me telling me I need to call the local Cystic Fibrosis clinic and make an appointment. When I asked the nurse why she said she wasn't sure, but the Dr had told her to give me that message. So I hung up with her and called the CF clinic. It was then on the phone a complete stranger to me informed me that Sarah's DNA test was POSITIVE for CYSTIC FIBROSIS. I was in tears almost immediately. It became official that our life would never be the same.

Tuesday, December 11, 2012

No news is good news

I know it has been a while since I have updated. Sorry, Life has been busy, but good.

Everyone is doing great and I am so happy to say that. Things are so different from a year ago. At that time we were in and out the hospital and at the drs offices every day trying to figure out what was going on with Sarah. Today she is a beautiful, smart, active and HEALTHY 17 month old.

Jason and I are doing great and just taking things day by day.
Brooke is in Preschool and doing wonderful. She comes home everyday and talks about all she has learned. I am so proud of her. She is learning to spell and starting to read. It is so much fun to see her grown.
Emma has been in speech and is thriving. We can really understand her so much better.
Sarah is doing awesome. She is no longer in OT, and is doing so well she is ending ST this week. She talks all the time now.

As I have more time I will update with more, but for now I just wanted to say that things are great!

Friday, October 26, 2012

Great Strides walk 2012

I decided back in April, after Sarah was diagnosed with CF that I wanted to form a team in her honor and walk in the Cystic Fibrosis largest fundraiser. So I formed the team Saving Sarah! The walk was this past Saturday and it was a huge success. Oh FYI this will be picture heavy.

Shari-----Goal, $500-----Raised, $650-----EXCEEDED GOAL!!!
Andy-----Goal, $500-----Raised, $520-----EXCEEDED GOAL!!!
Jason-----Goal, $150-----Raised, $175-----EXCEEDED GOAL!!!
Becky----Goal, $150-----Raised, $165-----EXCEEDED GOAL!!!
 Liz-------Goal, $150-----Raised, $160-----EXCEEDED GOAL!!!
 Phyllis-----Goal, $500-----Raised, $170
Drew-----Goal, $150-----Raised, $25

As a team we raised $1865!!!
Thanks to everyone who helped raise money and to those who donated. We couldn't have done it with out all of you.

This was our logo for the shirt we wore! I am happy with the way it came out. I created it myself! :)

 My dear and amazing friend Liz. She has supported us since the beginning. I am truly bless to have such a wonderful friend in my life.
 Team Sign I made
 Sarah's purple shoes
 Dancing to the music
 We had Sarah's name put on the back of her shirt.
 Kids on the team. 5 between the ages of 4 years-15mths
 Cindy and Sarah
 Great Aunt Becky and Sarah
 Grandpa and Sarah while we were listening to people talking about their life with CF.
 Jim and Phyllis with the girls
 Grandma Karen with the girls
 Dear friends from church who came out to support Sarah. We love you guys!
 Our Family
 Grandpa and Gammy with the girls
 Becky, Drew and Lacey with the girls
 Liz, Katie and Claire with the girls
 And we are off. Start of the walk!
 Sarah loved every minute of the walk. All those with CF either had a beaded necklace or a Hawaiian lei. This is to let each other know who has CF. People with CF are not supposed to come with in 3 feet of each other. If they do they can pass "super bugs" to each other.
 All the different teams and walkers
 Team Saving Sarah
 Grandpa and Brooke
 Sarah even walked a little!
 Emma walking
 Best Friends
 Most of TEAM SAVING SARAH (we were missing 5)
 Are all of you here for me?
 Well that is super cool. Thanks!